Emily Felt is a friend I have made on this journey with PWS. We first met in person in the cafeteria of UCSF. She and her daughter Oli drove from Davis to meet Freya and I before an appt. As you’ll hear, we both value our relationships, strive for gratitude and a healthy positivity, and believe in the importance of building community. She’s been on the podcast a few times and always brings an enlightening freshness and beautiful sentiments to the conversation.
We spoke about some practical logistics in raising a child with PWS—having clear boundaries, food safety in social situations and home, anxiety and how it manifests (like perseveration, skin picking, and food obsessing), and strategies for managing the anxiety and accompanying behavior. Here’s a clue, empathy is a great start!
Emily also talked about the importance of gratitude and ways to bring more into your daily life and the life of your family.